Monthly Archives: June 2013

Dancing in the Rain

I have had the remarkable experience this week of long conversations with many friends. It is heartening to know that despite my weakened voice, I can still be understood when I speak slowly and focus on speaking clearly. It is … Continue reading

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A Day in the Life – lived in the present

I had resolved not to use this blog as a diary, just recording daily events.  But today has been such an extraordinary day that I will make an exception and give you a peek at what passes for living in … Continue reading

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Change We Can Live WIth

We just experienced the longest day of the year – summer solstice. Ironic since my days are growing shorter. This week also marked one year since I first became aware of my ALS symptoms. And it was also Lou Gehrig’s … Continue reading

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Gratitudes

It is just about a year since I first became aware of the subtle changes to my tongue and speech that would relatively quickly have a name – Amyotrophic lateral sclerosis – ALS – or Lou Gehrig’s Disease. I have … Continue reading

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Visits to my past

So often in my life I find myself making comparisons of my situation or behavior to others and inevitably regretting them.  Lately those comparisons have been not to others, but to my pre-ALS self.  At the gym I do 10 … Continue reading

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