My name is Stuart Rakoff. I am 69 years old and live in Reston Virginia. In the summer of 2012 I was diagnosed with ALS – Lou Gehrig’s Disease – a neuromuscular disorder that has already affected my eating, swallowing and walking and which will eventually lead to almost complete paralysis. There is nothing in my family or health history to explain why I have this disease. Nor does the medical community have a solid understanding of the disease process – hence there are no useful treatments to arrest or slow the disease process.
I started writing this blog as a way to help me articulate to myself a strategy for coping with my situation. As I shared these brief writings with family and friends they urged me to share them more widely, so I began publishing them at Reston.Patch.com. I am now also posting them here at stuspeaks.wordpress.com to make it easier for friends to read them.
I hope these writings will stimulate a discussion of the subjects I raise, and encourage your comments.