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Tag Archives: ALS
Love
It feels like the end is getting closer. Connected full time to morphine pump, but pain is still unrelenting, especially in shoulder. Breathing harder. All water and nutrition now through gravity bags — drip, drip, drip. Need assistance for every … Continue reading
Now Comes the Pain
Up to now I have been fortunate that my symptoms have not included much pain – just occasional twinges. But over the last week or so the pain level has gone up dramatically, especially in my neck and back as … Continue reading
Posted in Uncategorized
Tagged Acceptance, ALS, Emily Dickinson, fear, gratitude, grief, Hardship, love, mindfulness, Serenity
11 Comments
FALL
FALL Not the time of year, but the adventure of tumbling to the ground unceremoniously. Falling has become a new part of my daily struggle with ALS. Fortunately no really serious consequences so far – no broken bones, just a … Continue reading
Discouragement
Feeling discouraged is pretty much a “normal” state of affairs for me these days. Much of that discouragement arises from spending too much time looking back at what I used to be able to do before my ALS and projecting … Continue reading
Posted in Uncategorized
Tagged Acceptance, ALS, change, gratitude, humility, mindfulness, Serenity, wisdom
11 Comments
Laughter
I had the opportunity this week to attend a meeting sponsored by the local MDA chapter that featured a speaker on common ALS symptoms of speech loss, swallowing difficulties and other bulbar disasters. Two other PALS (persons with ALS) were … Continue reading
Posted in Uncategorized
Tagged Acceptance, ALS, humor, laughter, Lou Gehrig's Disease, love, serenity humility
3 Comments
Control
ALS has meant learning to give up control of my body. My arms and legs no longer respond smoothly as I attempt to control movement. My mouth and throat muscles no longer respond to my desires to speak, chew or … Continue reading
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Tagged Acceptance, ALS, Anger, Being Alive, fear, gratitude, Lou Gehrig's Disease, love, Serenity, wisdom
7 Comments
The ALS Walk
This past Sunday was the Washington DC ALS Walk – a major get together and fundraiser here in the nation’s capital. After a great deal of uncertainty about the walk’s location because the government shut down closed the Washington Monument … Continue reading
Posted in Uncategorized
Tagged Acceptance, ALS, gratitude, Lou Gehrig's Disease, love, Serenity
1 Comment
