Tag Archives: Being Alive

Control

ALS has meant learning to give up control of my body.  My arms and legs no longer respond smoothly as I attempt to control movement.  My mouth and throat muscles no longer respond to my desires to speak, chew or … Continue reading

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New Wheels

Thanks to the local ALS chapter, I now have a bright red scooter from their lending closet.  Since walking more than a short distance has become a challenge, my mobility is greatly extended and it’s easier to get out around … Continue reading

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SECRETS

We are only as sick as our secrets. How many times have I heard that – without really understanding its deepest meaning? As I hobble around and speak with my garbled and slurred new voice, I have started paying more … Continue reading

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HUMILITY

For over 20 years I have been regularly attending a men’s Al-anon meeting. What I have learned in that meeting and from my brothers there has been an important part of my ability to deal with my ALS. Last Saturday … Continue reading

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Visits to my past

So often in my life I find myself making comparisons of my situation or behavior to others and inevitably regretting them.  Lately those comparisons have been not to others, but to my pre-ALS self.  At the gym I do 10 … Continue reading

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Being Alive

Sometimes the flood of emotions becomes almost unbearable. Sitting here thinking about how ALS is robbing me of my voice, my breath, my stride and my dignity, it is tempting to retreat inside and isolate myself from family and friends … Continue reading

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