Tag Archives: fear

Now Comes the Pain

Up to now I have been fortunate that my symptoms have not included much pain – just occasional twinges. But over the last week or so the pain level has gone up dramatically, especially in my neck and back as … Continue reading

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Getting Organized

Lately I have been almost obsessed with getting organized. Cleaning off my desk and editing file drawers. Sorting my closet to give away suits that no longer fit – either my body or lifestyle. Cancelling credit cards we no longer … Continue reading

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Thanksgiving

  Thanksgiving has always been one of the most important annual dates for our family.  Since Roz and I first celebrated with graduate school friends as newlyweds 47 years ago, the fourth Thursday in November has meant big gatherings of … Continue reading

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Control

ALS has meant learning to give up control of my body.  My arms and legs no longer respond smoothly as I attempt to control movement.  My mouth and throat muscles no longer respond to my desires to speak, chew or … Continue reading

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New Wheels

Thanks to the local ALS chapter, I now have a bright red scooter from their lending closet.  Since walking more than a short distance has become a challenge, my mobility is greatly extended and it’s easier to get out around … Continue reading

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HEARING

Learning to sit quietly. In a meeting.  At home. Living with my thoughts – It can be lonely. But think of conflicts avoided And loves not strained And listening without plotting. Now I hear.

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ANGER

A friend asked me recently if I was angry about my ALS. Good question. The honest answer is that a year ago anger was one of the strong emotions running rampant through my head and limbic system. I have gotten … Continue reading

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On Timing

When I have fears that I may cease to be Before my pen has glean’d my teeming brain, (Keats) My reading this week has included two wonderful novels by Nicholson Baker – The Anthologist and The Traveling Sprinkler. The main … Continue reading

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Saying Goodbye

This week we moved my mother, soon to be 94, to an assisted living facility in Massachusetts near my brother Bob.  She has been living near us here in Reston for almost 10 years, but the combination of my ALS … Continue reading

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PLANS

Long about Thursday afternoon each week I feel the urge (and perhaps the need) to set down another 500 words to share. It’s not so much about meeting a deadline, as honoring what has become an important internal rhythm. There … Continue reading

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