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Tag Archives: fear
Now Comes the Pain
Up to now I have been fortunate that my symptoms have not included much pain – just occasional twinges. But over the last week or so the pain level has gone up dramatically, especially in my neck and back as … Continue reading
Posted in Uncategorized
Tagged Acceptance, ALS, Emily Dickinson, fear, gratitude, grief, Hardship, love, mindfulness, Serenity
11 Comments
Control
ALS has meant learning to give up control of my body. My arms and legs no longer respond smoothly as I attempt to control movement. My mouth and throat muscles no longer respond to my desires to speak, chew or … Continue reading
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Tagged Acceptance, ALS, Anger, Being Alive, fear, gratitude, Lou Gehrig's Disease, love, Serenity, wisdom
7 Comments
New Wheels
Thanks to the local ALS chapter, I now have a bright red scooter from their lending closet. Since walking more than a short distance has become a challenge, my mobility is greatly extended and it’s easier to get out around … Continue reading
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Tagged Acceptance, ALS, Being Alive, change, fear, gratitude, history, humility, John Keats, live in the present, Lou Gehrig's Disease, love, Self-awareness, Serenity, wisdom
9 Comments
ANGER
A friend asked me recently if I was angry about my ALS. Good question. The honest answer is that a year ago anger was one of the strong emotions running rampant through my head and limbic system. I have gotten … Continue reading
Posted in Uncategorized
Tagged Acceptance, ALS, Anger, change, fear, gratitude, grief, Lou Gehrig's Disease, love, mindfullness, Self-awareness
1 Comment
On Timing
When I have fears that I may cease to be Before my pen has glean’d my teeming brain, (Keats) My reading this week has included two wonderful novels by Nicholson Baker – The Anthologist and The Traveling Sprinkler. The main … Continue reading
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Tagged Acceptance, ALS, fear, feeding tube, gratitude, grief, John Keats, kayaking, Lou Gehrig's Disease, love, mindfullness, mindfulness, MND, Nicholson Baker, Philip Larkin, Reston Interfaith, Self-awareness, Serenity
2 Comments
Saying Goodbye
This week we moved my mother, soon to be 94, to an assisted living facility in Massachusetts near my brother Bob. She has been living near us here in Reston for almost 10 years, but the combination of my ALS … Continue reading
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Tagged Acceptance, ALS, fear, gratitude, grief, humility, Lou Gehrig's Disease, love, Self-awareness, Serenity, trust, wisdom
9 Comments
PLANS
Long about Thursday afternoon each week I feel the urge (and perhaps the need) to set down another 500 words to share. It’s not so much about meeting a deadline, as honoring what has become an important internal rhythm. There … Continue reading
