Tag Archives: Hardship

Now Comes the Pain

Up to now I have been fortunate that my symptoms have not included much pain – just occasional twinges. But over the last week or so the pain level has gone up dramatically, especially in my neck and back as … Continue reading

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HUMILITY

For over 20 years I have been regularly attending a men’s Al-anon meeting. What I have learned in that meeting and from my brothers there has been an important part of my ability to deal with my ALS. Last Saturday … Continue reading

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Gratitudes

It is just about a year since I first became aware of the subtle changes to my tongue and speech that would relatively quickly have a name – Amyotrophic lateral sclerosis – ALS – or Lou Gehrig’s Disease. I have … Continue reading

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Visits to my past

So often in my life I find myself making comparisons of my situation or behavior to others and inevitably regretting them.  Lately those comparisons have been not to others, but to my pre-ALS self.  At the gym I do 10 … Continue reading

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The End of Multitasking

Like so many of us, I had become quite accomplished at multitasking. I could be on a conference call, reading email, balancing my checkbook and eating at the same time. Or more accurately, I could move back and forth between … Continue reading

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Thoughts and Feelings About Grief

“Grief comes in waves, paroxysms, sudden apprehensions that weaken the knees and blind the eyes and obliterate the dailiness of life.”    Joan Didion, The Year of Magical Thinking I recently stumbled across this quotation from Joan Didion’s magnificent journal of … Continue reading

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On eating and speaking

One consequence of my ALS is that eating has become an adventure.  Since I can most easily eat thick soups, purees and smoothies, I bought myself a mega-blender – a $500 Vitamix.  This machine is soooooo cool.  The blades spin … Continue reading

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