Tag Archives: Lou Gehrig’s Disease

Getting Organized

Lately I have been almost obsessed with getting organized. Cleaning off my desk and editing file drawers. Sorting my closet to give away suits that no longer fit – either my body or lifestyle. Cancelling credit cards we no longer … Continue reading

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Bah Humbug

  I find these days that my mind is racing far ahead of my body.   Objectively my condition has declined but not dramatically.  I can still walk, unassisted in the house and with a cane for short walks out.  I … Continue reading

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FALL

FALL Not the time of year, but the adventure of tumbling to the ground unceremoniously. Falling has become a new part of my daily struggle with ALS. Fortunately no really serious consequences so far – no broken bones, just a … Continue reading

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Thanksgiving

  Thanksgiving has always been one of the most important annual dates for our family.  Since Roz and I first celebrated with graduate school friends as newlyweds 47 years ago, the fourth Thursday in November has meant big gatherings of … Continue reading

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Laughter

I had the opportunity this week to attend a meeting sponsored by the local MDA chapter that featured a speaker on common ALS symptoms of speech loss, swallowing difficulties and other bulbar disasters.   Two other PALS (persons with ALS) were … Continue reading

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Control

ALS has meant learning to give up control of my body.  My arms and legs no longer respond smoothly as I attempt to control movement.  My mouth and throat muscles no longer respond to my desires to speak, chew or … Continue reading

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The ALS Walk

This past Sunday was the Washington DC ALS Walk – a major get together and fundraiser here in the nation’s capital. After a great deal of uncertainty about the walk’s location because the government shut down closed the Washington Monument … Continue reading

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New Wheels

Thanks to the local ALS chapter, I now have a bright red scooter from their lending closet.  Since walking more than a short distance has become a challenge, my mobility is greatly extended and it’s easier to get out around … Continue reading

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HEARING

Learning to sit quietly. In a meeting.  At home. Living with my thoughts – It can be lonely. But think of conflicts avoided And loves not strained And listening without plotting. Now I hear.

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ANGER

A friend asked me recently if I was angry about my ALS. Good question. The honest answer is that a year ago anger was one of the strong emotions running rampant through my head and limbic system. I have gotten … Continue reading

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