Tag Archives: love

Love

It feels like the end is getting closer. Connected full time to morphine pump, but pain is still unrelenting, especially in shoulder. Breathing harder. All water and nutrition now through gravity bags — drip, drip, drip. Need assistance for every … Continue reading

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Now Comes the Pain

Up to now I have been fortunate that my symptoms have not included much pain – just occasional twinges. But over the last week or so the pain level has gone up dramatically, especially in my neck and back as … Continue reading

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Getting Organized

Lately I have been almost obsessed with getting organized. Cleaning off my desk and editing file drawers. Sorting my closet to give away suits that no longer fit – either my body or lifestyle. Cancelling credit cards we no longer … Continue reading

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Laughter

I had the opportunity this week to attend a meeting sponsored by the local MDA chapter that featured a speaker on common ALS symptoms of speech loss, swallowing difficulties and other bulbar disasters.   Two other PALS (persons with ALS) were … Continue reading

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Control

ALS has meant learning to give up control of my body.  My arms and legs no longer respond smoothly as I attempt to control movement.  My mouth and throat muscles no longer respond to my desires to speak, chew or … Continue reading

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The ALS Walk

This past Sunday was the Washington DC ALS Walk – a major get together and fundraiser here in the nation’s capital. After a great deal of uncertainty about the walk’s location because the government shut down closed the Washington Monument … Continue reading

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New Wheels

Thanks to the local ALS chapter, I now have a bright red scooter from their lending closet.  Since walking more than a short distance has become a challenge, my mobility is greatly extended and it’s easier to get out around … Continue reading

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HEARING

Learning to sit quietly. In a meeting.  At home. Living with my thoughts – It can be lonely. But think of conflicts avoided And loves not strained And listening without plotting. Now I hear.

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ANGER

A friend asked me recently if I was angry about my ALS. Good question. The honest answer is that a year ago anger was one of the strong emotions running rampant through my head and limbic system. I have gotten … Continue reading

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On Timing

When I have fears that I may cease to be Before my pen has glean’d my teeming brain, (Keats) My reading this week has included two wonderful novels by Nicholson Baker – The Anthologist and The Traveling Sprinkler. The main … Continue reading

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