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Tag Archives: love
Saying Goodbye
This week we moved my mother, soon to be 94, to an assisted living facility in Massachusetts near my brother Bob. She has been living near us here in Reston for almost 10 years, but the combination of my ALS … Continue reading
Posted in Uncategorized
Tagged Acceptance, ALS, fear, gratitude, grief, humility, Lou Gehrig's Disease, love, Self-awareness, Serenity, trust, wisdom
9 Comments
PLANS
Long about Thursday afternoon each week I feel the urge (and perhaps the need) to set down another 500 words to share. It’s not so much about meeting a deadline, as honoring what has become an important internal rhythm. There … Continue reading
Hiding
Everything takes sooooooo long these days. Simple chores like eating breakfast can take an hour or more because I move slowly in the kitchen as I make my “instant” oatmeal, carry it to my desk, wait for it to cool … Continue reading
Posted in Uncategorized
Tagged Acceptance, ALS, gratitude, grief, Lou Gehrig's Disease, love, Serenity
7 Comments
On love
Roz and I celebrated 47 years of marriage this week. We have known each other for almost 60 years. So it is no understatement to say that we think of each other as life partners. We have had a remarkable … Continue reading
TRAPPED
The most frequent image and feeling I have these days is of being trapped. As my speech weakens more of my thoughts do not escape my mind to be shared as they occur. (Not necessarily a bad outcome.) As eating … Continue reading
Posted in Uncategorized
Tagged Acceptance, ALS, fear, Lou Gehrig's Disease, love, Serenity
3 Comments
Eating Naked
Not a pretty picture, but ……. I spend almost half my waking hours feeding myself. There are still some things I can eat though my mouth – oatmeal, soups, smoothies, some dense chili-like preparations, and this week I discovered waffles … Continue reading
Posted in Uncategorized
Tagged Acceptance, ALS, grief, Lou Gehrig's Disease, love, meditation, multitasking, Serenity
7 Comments
Sunny Wednesday
I want to send a sincere thank you to all my friends who have sent positive messages since my dire posting about Sunday’s funk. I am very happy to report that those messages, and getting back into my routine of … Continue reading
Posted in Uncategorized
Tagged Acceptance, ALS, grief, Lou Gehrig's Disease, love, meditation, multitasking, Serenity
5 Comments
Black Sunday
I think I always knew there would be a day like yesterday. It started out fine. Two full days back from our trip and pretty much past the jet lag symptoms. A good night’s sleep. Breakfast was tasty and filling. … Continue reading
Posted in Uncategorized
Tagged Acceptance, ALS, grief, Lou Gehrig's Disease, love, meditation, multitasking, Serenity
13 Comments