Tag Archives: Self-awareness

Thoughts and Feelings About Grief

“Grief comes in waves, paroxysms, sudden apprehensions that weaken the knees and blind the eyes and obliterate the dailiness of life.”    Joan Didion, The Year of Magical Thinking I recently stumbled across this quotation from Joan Didion’s magnificent journal of … Continue reading

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Being Alive

Sometimes the flood of emotions becomes almost unbearable. Sitting here thinking about how ALS is robbing me of my voice, my breath, my stride and my dignity, it is tempting to retreat inside and isolate myself from family and friends … Continue reading

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Reflections on Nourishment

Welcome to the world of feeding tubes. My life took a major turn this week with the addition of a PEG – a Percutaneous Endoscopic Gastronomy (Feeding) tube. The accompanying picture will give you an idea of what now hangs … Continue reading

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On eating and speaking

One consequence of my ALS is that eating has become an adventure.  Since I can most easily eat thick soups, purees and smoothies, I bought myself a mega-blender – a $500 Vitamix.  This machine is soooooo cool.  The blades spin … Continue reading

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